My pulmonary hypertension journey february 21 2013 by dr jeremy feldman every patient i have met in our pulmonary hypertension clinic has one thing in common their journey to diagnosis and treatment for their pulmonary arterial hypertension has been long and frustrating she was diagnosed with pulmonary arterial hypertension and . Our own family members suffer from rare diseases we created patientjourneyorg to help better understand the process of rare disease diagnosis and provide information and insights to members of the rare disease community the journey between symptom onset and diagnosis is relatively unique for each disease but there are often common patterns in the diagnostic we believe . Nov 21 2013 explore ellenmelinda84s board my journey with pulmonary hypertension followed by 177 people on pinterest see more ideas about pulmonary hypertension blood pressure remedies and blood pressure chart. Introduction the patient journey from first symptoms to diagnosis of pulmonary arterial hypertension pah can often be prolonged and frustrating as pah is a rare disease with non specific symptoms eg fatigue and shortness of breath which may be mistaken for other common less serious illnesses
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